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Methods Self-efficacy, trust and SCD knowledge were measured prospectively at baseline and months 3, 6, 9, and 12.

Adherence to clinic appointments and healthcare utilization were measured retrospectively from medical records.

The inherited disease causes red blood cells of mostly people of African descent to deform into a sickle shape.

This inhibits the red blood cells from carrying oxygen throughout the body, which can cause severe pain and organic damage.

With only one FDA-approved treatment and no widely available cure, life is extremely challenging for people with SCD.

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Among them, the Society has launched an effort to develop clinical practice guidelines on the management of SCD.An expansion of ASH’s commitment to identify and confront unmet needs in SCD patient care, these guidelines will be created with input from physicians and patients to address the unique needs of this underserved patient population.An inherited, lifelong chronic disorder affecting nearly 100,000 Americans, SCD is characterized by rigid, sickle-shaped red blood cells that stick to blood vessels, blocking blood flow.“From enabling patients to find local health care providers with the knowledge and expertise to provide proper care, to supporting efforts to bring newborn screening and early intervention to infants and children with sickle cell disease in sub-Saharan Africa, there is enormous opportunity to transform the way we care for people suffering from SCD.ASH is ready to tackle this effort on all fronts.” War on Opioids Hurts Sickle Cell Disease Patients Sickle Cell Disease Sufferers Trapped In Fight Against Opioid Scourge the thousands of individuals who suffer from the effects of sickle cell anemia, pain is a common part of their lives.




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